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- Eric M. Roberts, MD, PhD, Pilot
Project Manager
- Geoff Lomax, DrPH, Research
Director
- Paul English, PhD, MPH, Principal
Investigator
- Lucy Johns, MPH, Health Policy
Consultant
- Environmental Health Investigations Branch
Division of Environmental and Occupational Disease Control
California Department of Health Services
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2
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- Structure: Health care providers
and analytical laboratories report to state-based registry systems
- Topics of interest:
- Cancer
- Birth defects
- Occupationally-related illnesses
- Blood lead levels
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3
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- Interest extends beyond this short list of topics
- Even when dealing solely with disease surveillance, we recognize in EPHT
that alternative sources of data are potentially useful
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4
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- In the information age, many large databases contain health information
in the private sector
- Utilization of these databases for EPHT requires the creation of
alternative models for disease surveillance
- Issues:
- Confidentiality (for patients and corporate entities) and HIPAA
- Data ownership
- Data quality assurance
- Adaptability to objectives of population disease surveillance
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5
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- We analyzed four databases covering physician office practice in
California:
- Pacific Business Group on Health (PBGH), San Francisco
- Integrated Healthcare Association (IHA), Walnut Creek
- California Public Employees Retirement System (PERS), Sacramento
- Kaiser-Permanente of Northern California (KPNC), Oakland
- Specific focus on asthma for this analysis
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6
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- Adaptability to EPHT
- Numerator variables
- Seek a wide variety of diseases
- Date of birth, gender, race/ethnicity, address
- Occupation
- Dates and types of service (ER visit, prescription purchasing, etc)
- Denominator variables—can we define a population at risk?
- Barriers to use for EPHT
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- Pacific Business Group on Health
- A voluntary coalition of 48 purchasers of health benefits, including
large firms and public agencies
- Main purpose is aggregation of buying power
- Covers approximately 3 million enrollees
- Integrated Healthcare Association
- A group composed of California health plans, physician groups, and
health care systems
- Interested in policy development, health services research
- Data collection project involving 6 health plans with over 8 million
enrollees
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8
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- PBGH monitors only patients with diagnoses of interest—not suitable for
prevalence calculations
- Public health surveillance aligned with IHA interests but not PBGH
interests
- Both oriented towards HEDIS measures
- All screening and chronic disease management measures
- Limited to 3 diseases for monitoring purposes (asthma, diabetes,
coronary artery disease)
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- A state government agency purchasing health insurance on behalf of 1.2
million government employees, retirees, and dependants
- Largest employer purchaser in the state
- A member of PBGH
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- Developing “data warehouse” by requiring standardized claims forms
(UB-82)
- Managed care organizations to develop encounter forms that are
compatible with this format
- Both numerator and denominator data easily adaptable to Tracking
purposes
- Policies to govern external access to PERS data are under development;
HIPAA a large concern for this issue
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- Regional HMO with nearly 3.2 million members
- Ongoing monitoring of both beneficiary pool and all transactions related
to patient care
- Extensive history of research collaboration
- Maintains Oakland campus Division of Research
- Both business and public health interests
- Interaction with EHTP governed by collaborative research model
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13
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- A single, urban county in Northern California
- Calendar year 2001
- Monitoring
- Birth outcomes
- Asthma-related health care utilization
- Traffic exposure
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14
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- Sources: Kaiser Permanente of
Northern California and Medi-Cal (part of DHS)
- Relationship with KP Division of Research
- Collaborators on grant (2); require both funding and some control of
findings
- Sophisticated IT support, clinical epidemiologists
- Seen from their end as a research project; less interested in ongoing
system development, policy implications
- Understood that ongoing system would require re-negotiation of
relationship
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- Implications for tracking:
- 6.1 million person-months for Alameda County in 2001 (Medi-Cal added
1.2 million person-months to this)
- About 35% of county population
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- Core EPH Indicators for asthma burden (CSTE/CDC)
- 587 hospitalizations
- 2,694 ER visits
- EPHI under development
- 51,087 outpatient clinic visits
- 218,205 prescription fills (asthma only)
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18
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- Data collection efforts in the private sector vary in their adaptability
for EPHT
- Some are inclined towards collaboration for public health policy
development, while some are not
- Collaboration with private sector health providers and purchasers can
make available
- Very large sample sizes
- A wide variety of outcomes for monitoring
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19
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- Principle Investigator
- Paul English, PhD MPH
- Research Director
- Geoff Lomax, DrPH
- IT/GIS Manager
- Craig Wolff, MS Eng
- Administration
- Mailie Newman
- Community Health Education
- Michelle Wong, MPH
- Mimi Johnson, MPH
- Eddie Oh, MPH
- University of California Center for Excellence
- Jonathan Balmes, MD
- Ira Tager, PhD
- Amy Kyle, PhD
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